DMD Treatment & Funding Liaison

I am helping a friend who has just been diagnosed with Duchenne Muscular Dystrophy (DMD), a rare genetic condition that often requires very specialized care. What I need now is a reliable partner who can take the lead on two fronts at once: 1. Identifying and opening lines of communication with the right international facilities—university hospitals, specialty neuromuscular clinics, and research institutions that are actively treating or studying DMD. 2. Exploring every realistic avenue for financial assistance, from corporate‐sponsored compassionate-use programs and disease-specific foundations to larger research grants and private philanthropists. I will provide clinical records, background notes, and a dedicated email account that you will use for all correspondence. Your day-to-day work will revolve around drafting concise emails, placing follow-up calls when an answer lags, logging every interaction, and flagging any additional documents or signatures the hospitals or sponsors request. Key expectations • Work globally—please cast the net wide rather than limiting yourself to a single country. • Keep all outreach professional, empathetic, and HIPAA-conscious. • Share a running tracker (Google Sheet or similar) so I can see contact status at a glance. • Send me a brief weekly summary highlighting progress, obstacles, and next steps. Deliverables (hand-off ready) • A vetted list of at least ten relevant facilities with named contacts, phone numbers, and email addresses. • A parallel list of potential funding sources matched to each facility or treatment program. • The communication log with copies of all sent emails and call notes. • A final recommendation memo outlining the strongest treatment+funding pathway identified. If you have prior experience in medical liaison work or rare-disease fundraising, let me know in your proposal; otherwise, show me how you plan to tackle the research and outreach efficiently. I am ready to start as soon as you are. Start your bid with "Sensitive Case"

Project ID: 40567274